Ehlers-Danlos/Hypermobility Spectrum Disorders Clinic - Temporarily Closed to New Referrals
Although the CCHMC Hypermobility Clinic is closed to new referrals due to a planned retirement, OT/PT is still taking referrals for joint stability and strengthening for hyper mobile patients. We are actively recruiting and in the interim, we have compiled a resource list including recent podcasts on the topic.
If you have questions about suitability/necessity of specific genetic testing for a patient, please contact the genetic counselor on call via Physician Priority Link (513-636-7997). You can continue to use E-consult (part of Epic Link) for non-urgent patient related questions.
EDS/Hypermobility Resources:
Pediatric Grand Rounds - Multidisciplinary Challenges in Hypermobility Spectrum Disorders - Melodie Blacklidge, MD Presented May 23, 2023
Community Practice Support Tools | Resources (cincinnatichildrens.org) Look for the practice support tool under Human Genetics.
Community PCP: Pediatric Consult Podcast - Hypermobility Spectrum Disorders Pediatrician Jill Schaffeld discusses EDS with Melodie Blacklidge, MD.
Home - The Ehlers Danlos Society (ehlers-danlos.com) The Ehlers-Danlos Society website.
2017 EDS International Classification - The Ehlers Danlos Society (ehlers-danlos.com) 2017 EDS International Classification (Ehlers-Danlos Society webpage).
Assessing Joint Hypermobility - The Ehlers Danlos Society (ehlers-danlos.com) Assessing Joint Hypermobility (Ehlers-Danlos Society webpage).
EDS and HSD Info - The Ehlers Danlos Society (ehlers-danlos.com) EDS and HSD information (Ehlers-Danlos Society webpage).
For Patients and Families:
Podcast - Cate’s Story: A Teenager’s Journey to Understand and Take Control of Her Health | Young & Healthy (podbean.com) Listen as we talk to Cate and a member of her “medical village”, Dr. Melodie Blacklidge, about Cate’s eventual diagnoses of Hypermobility Spectrum Disorder and POTS – or postural orthostatic tachycardia syndrome. Dr. Blacklidge explains hypermobility in an understandable way and explores how lonely it can be to have a condition that others don’t understand.